Friday, September 20, 2013

2 month follow up on trial

Well, Much to my surprise I  received a bit of good news today from the doctors.  I'd been expecting that my results wouldn't be that good considering all the difficulties I've been having on this trial.  That, and I just haven't felt anything that would lead me to believe that I'm benefiting;  I've even considered that maybe it's not working at all. 

Despite all those anxieties,  the doctors are pleased that I seem to be having so response to the drugs and they are seeing necrosis of the tumors.  Now I know that tumor necrosis is also a factor of tumor growth outpacing it's blood supply, but in this case they believe it is a result of the drugs.  I just wish the symptoms and side effects I'm experiencing would start to lessen.

Friday, September 13, 2013

Oddities that make me wonder

On one of my recent transfusions of blood due to sever anemia, I was told that my blood type is very rare.  I didn't really think much of it at the time, but since then I've been considering...  I have this, what I'm told is a, rare disease and now I'm being told I have a rare blood type; could there be any correlation?  It doesn't seem like medical science has even looked into it very closely.  Also, I'm wondering are there other rarities in my personal biology that are markers or predispositions to my disease?  As in my blood typing, B-, just look at the "Blood Types and the Population" at the red cross website, the only blood type more rare is AB-...  so I'm drawing that perhaps my rare blood type correlates with my rare disease.

One study they have done for the correlations between biology and disease presentation is in the case of cervical ribs. The study indicates that of the patients reviewed, there was at least some degree of correlation between cervical rib presence and the incidence of disease, in my disease case 24.5% .  I don't know if I have cervical ribs, but I plan to ask.