Monday, March 26, 2012

Last round of trebectadin

After the last round of Trebectadin I've been pretty good. None of the abdominal pain has recurred and in general I've been handling the drug well. Had some nose bleeds the resolved quickly and quite a bit of tiredness the week following the treatment, but I just make sure and get my rest... lots of it.

To my perception I don't think the drug is having any affect. I still have a lot of swelling and it seems worse or the same as before. I've really been getting out of shape lately; I went for a long walk yesterday and hiking up a moderate incline I could feel the swelling increasing in my leg and it was really cumbersome/tiresome to move my leg.

I'm going to keep posting up things I want to try, mostly as a reminder to me.

pazopanib - this was one of the 3 next options that my doctor offered me, as well as Gemcidtabine w/ docetaxil, and Trebectadin. I've read more and more about people using Pazopanib and having some success with it, although not lasting. I'm interested in it because of the way it works, and it's short term efficacy in reducing tumor size is something I really want. The swelling and reduced mobility is really frustrating, I think if the tumor shrinks, some of that could be relieved, if only for a bit. It works through antiangiogenesis, which is something I've been interested in from other readings. I'd prefer squalamine, but that is only clinical at this time for other cancer types so I doubt I can get that. Otherwise, there is a supplement I'm considering trying that indicates it's a natural source of squalamine...

Cryo-ablation - I've read that this is an option covered by insurance and I'm trying to pursue it with a specialist. My doctor doesn't know anything about it.

1 comment:

Elodie said...

The most experienced cryosurgery specialist is probably Peter Littrup:
http://www.karmanos.org/app.asp?id=1117
He has worked on sarcoma before:
http://www.alveolarspsarcoma.net/index.php?p=trials