Unfortunately, not able to get on the clinical trial in Canada. My Dr. referred me, but the trial is closed; per British Columbia CA(BCCA), the company is having financial difficulties. I wasn't clear on whether that is in reference to the BCCA or the actual drug manufaturer(sponsor). The drug was for an HDAC inhibitor that has shown good results and great tolerability. Many HDACi's seem to be well tolerated.
That lead to my brother finding out about a clinical HDACi drug called PCI-24781. I looked up some information on it and it will be tested in combination with Pazopanib in a trial in SF. I'm going to see if I can get on that one. It seems to have a large enrollment option and starts soon. Since I'm getting scripted for Pazopanib, I'm cautiously optimistic I can get on it. It's Phase 1, so it's open label... NCT01543763 http://clinicaltrials.gov/ct2/show/NCT01543763
Other news; what a fiasco to get on Pazopanib... I was told I could get the script filled locally, then the manufacturer informed the pharmacy they can't/won't ship to them. I ended up spending over an hour on hold and transferring around the manufactures help lines and my insurance helplines before I was able to get my insurance to send the drug to me directly. They just need the script from my Dr. Should get that today...
Cryoablation; I received a call from them, the had a problem with the cd's I provided them, so I'm going to have to get new ones from my Dr. I'm dragging my feet on that...
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